Okay, so you have to know by now I have MS and since I’ve been diagnosed I’ve been on A LOT of medications. So many that I’m surprised I’m not a walking zombie.
Seriously, I felt like a guinea pig or a lab rat at one point because it seemed as if none of these medications were working for me and I would have to try another, and another and well you get the point. Nothing seemed to be controlling my flares.
The medications were from one extreme to the other. I would have to give myself shots once week, sometimes once a day, and at times I would have to go and get IV infused medicine. Oh and the side effects … some days it was so hard to even get out of bed. Working out was hardly an option, and going to work everyday was a pain, literally.
I was so sick and tired of being sick and tired, it was ridiculous.
It took me YEARS to figure out what the best medication was for me and really I can’t say that I’ve mastered it. I haven’t really mastered the whole “listening to my body” thing because well MS is a tricky little beast.
In between the different medications, I’ve changed my diet a million times. I’ve stopped eating meat, I’ve eaten meat, I’ve only eaten air, I’ve only drank water. Okay, some of that is an exaggeration, but you get my point. I’ve tried pretty much everything because I do not like taking medicine and did not want to take it so I figured I could make some changes with my eating as well. Anything to help, right?
Over the years, this has caused me to become frustrated, depressed, and I’ve also isolated myself from my family and friends at times. It’s been tough to say the least, like I truly felt at times that I didn’t have anywhere to turn. Taking so many medications at one time and the side effects will have you acting a little different and sometimes people do not understand that. So it was hard trying to explain this to people. I just knew I was not acting myself at times and I needed to find a solution.
After a billion more doctor appointments, I finally (fingers crossed) think I found a medication that is working for me. It has minimal side effects (which was my main concern) and it’s a pill. No more injections .. woo hoo. I feel like I have my life back. MS makes me feel overwhelmed sometimes, but I defiently feel like I have better control over this beast.
Also, having a great relationship with your doctor is so very important. I can’t express that enough. Doctors can seem intimidating, but you have to advocate for yourself. This is your health, your body, your life.
So, I’m happy to report that I have found a medication that works for me with minimal side effects.
Until next time…